Session 8: Digital Patient Education

Saturday, 20 June, 2015 - 09:45 to 11:00
Conference room: 

Patient Empowered Education and Research: Integration Study on how to integrate Patient Generated Health Data in Quality Registers

Background: Healthcare is transformed by the usage of new technologies, like Wearable Devices (WD). Patient generated health data (PGHD) from WDs could be found useful in the management and the research of a chronic disease, like Multiple Sclerosis (MS). Objective: The objective of the study was to propose a model for the import of PGHD from WDs to the MS Quality Register (MS QR), the main resource for research on MS in Sweden. The study focused both on the medical data that is needed and on the technical challenges that exist in such an implementation. Methods: Design Science was adopted as a methodology. The context of the study chosen was the MS QR. Participants were interviewed for the technical part and a questionnaire was delivered in order to find the most meaningful PGHD for MS QR. Based on the results, an artifact was created and evaluated from the perspective of the MS QR stakeholders. Results: The survey was answered by 35 healthcare professionals. The results revealed the factors that WDs can help track for the monitoring of a disease like MS. The interviews revealed several challenges and opportunities, like the legislative or organizational difficulties, but also the opportunities that appear with initiatives towards healthcare innovation. The evaluation triggered an optimization of the technical integration model, demonstrating that simple solutions could solve complex problems. Conclusion: The import of PGHD in MS QR, is technically possible. Applications should also be added together with WDs monitoring. The choice of model to use, is strongly related to how the data will be used within the organization.

DISCOVER-ing OpenSim; Qualitative results from assessing Scenario Based Learning for carers of the elderly

Background: Insufficient and inefficient training for carers of elderly, both formal and informal, imposes significant costs to the healthcare systems of first world countries. Modern lifestyle and adult obligations of this target group, make ordinary teaching methods counterproductive to the point of non-applicable. Scenario based learning has emerged as a valid form of self-directed self-paced education, in formal and informal context. Virtual Environments have, on the other hand, been established as experiential platforms for delivering serious purpose and recreational content. Objective: This work aims to provide a first qualitative assessment of the user perceptions and impressions of deploying an elderly care virtual scenario deployed in the OpenSim Virtual Environment. Methods: 10 formal and informal carers (7 informal, 3 formal) mostly female (8 female, 2 male) experienced a training virtual scenario in OpenSim. The scenario involved the care actions necessary for an elderly male recent widower with pre-existing chronic health issues, moving in with his daughter and facing psychological and cognitive decline. Qualitative assessment was conducted through short, loosely structured interviews that were conducted immediately after the participants have experienced the scenario. Results: The participants identified the following advantages: immediacy of the environment increasing learning impact; relaxed pace of the experience allowing easier absorption of the material, as well as allowing to learn in a controlled environment without stressful time sensitive decisions. Areas of improvement included: the need for even more immersive presentation, such as audio narrative instead of textual feedback, more complex scenarios, with more visual cues for the user’s actions, as well as more open ended interaction with the virtual case. Conclusions: The users viewed the implementation of the virtual scenario in the OpenSim 3D virtual environment in a very positive light demonstrating a fertile ground for further enriching and developing this educational modality as a carer training tool.

Designing patient education with distance learning

Background: Self-management is crucial for patients with chronic diseases. The development of an online learning platform, incorporating a knowledge-driven decision support system, could increase the level of self-management by tailoring education to the patient needs. This leads to better patient understanding and increasing awareness of the importance of self-management. Objective: Describing the needs and requirements of type 2 diabetics for the development of an education platform. The study tried to analyse whether patients like to use a full knowledge driven decision support platform over classic patient centric education. Methods: A qualitative approach for this study used 6 participants, aged 30 to 65 years old. They were diagnosed with type 2 diabetes not earlier than 6 months ago and had no further secondary diabetic complications. They participated in an interview on the several topics related to diabetes. The interview was based on using Diabetes Self-Management Education (DSME). The interview contained both structured and unstructured questions, and was performed with a high-level of involvement to let participants provide consistent information throughout the data-collection. Results: Participants preferred to receive education that is changing to their needs. The incorporation of multimedia was highly recommended, and the method of receiving education was recommended to change per subject. Overall, patient-centric learning was preferred, but knowledge driven learning was welcomed as an addition to some subjects. Conclusion: The education offered is limited to providing basic understanding of self-management. Participants felt the need for follow-up education, but could not be provided with this. The proposed platform, with possibilities to access knowledge whenever the patients needed, was seen as a welcoming addition to the current education. Using patient-centric learning, combined with the integration of knowledge driven decision support, could significantly increase self-management among diabetics.

Investigating readiness to using Internet and mobile services of diabetic patients of a middle-income country

Background: Diabetes mellitus is increasing worldwide especially in developing countries like Iran as a consequence of urbanization also use of the Internet and mobile service are increasing as well. The independent use of Internet and mobile technologies by the patients is a key step towards self-care management of the disease. Summary of work: A validated questionnaire used to collect data from patients and calculated face and content validity and reliability. The questionnaires were completed between July and September 2013 by patients between 20 to 60 years of age who come to two diabetic clinics for routine checkup. The questionnaire had two parts; the first part consisted of 16 items collecting demographics information. If the patients answered that they used the internet on a routine basis they were asked then to complete the second part. The second part of the questionnaire contained 26 items about the specific use of the Internet and mobile service to access information and one open question on the same issue. Summary of results: 407 questionnaires were completed by patients with DM. 108 (26, 5%) had routine access to Internet. Of all patients who had access to Internet 95, 4 % had routine access to mobile services; 92, 6% sent and received SMS and 77, 8 % were positive to the use of Persian website for medical information. Discussion and Conclusion: Most diabetic patients in this study were willing to receive educational material by the Internet and preferred to use a Farsi website. Take-home massage: Patients with DM can be reached with Internet and mobile learning services that can help improve the patients’ self-care management of the disease.

Introducing Biomedical Studies in Education at a pre-college level: The launch of Johns Hopkins University Center for Talented Youth Greece

The Center for Talented Youth (CTY) was founded in 1979 at Johns Hopkins University and originally aimed at recognizing and educating students with a special flair in mathematics. It soon expanded its activities in different areas, involving students with broader academic skills. The Stavros Niarchos Foundation envisioned on the need to establish a relevant Center in Greece and decided to fund this venture. During the summer of 2014 the first Residential Summer Camp of CTY Greece was held in Greece. One of the six courses offered was Introduction to Biomedical Sciences. The course was designed to give students an opportunity to learn about the human body’s anatomy and physiology and their role in maintaining homeostasis. Throughout the course, interactive lectures, case studies, game-based learning, inquiry-based labs and dissections allowed students to develop their skills on problem solving, scientific thinking, decision making, and teamwork. At the same time they were introduced to emerging issues that doctors face in different fields of Medicine such as Pathology, Cardiology, Epidemiology and Microbiology. Innovative tools in informatics such as online educational games, high quality real life videos, simulations and databases were used. This approach significantly enhanced experiential learning and enabled them to work in groups of students with different cognitive level since participants in the CTY Program were between 12 to 16 years old. By the end of the course, students were able to acquire an understanding of major concepts in medicine and to relate the structure and function of the human body. This was assessed by comparing a pre-assessment given at the beginning and a post-assessment test given at the end of the course. In 2015 two new biomedical courses were offered by CTY: Sensory Brain and Genetics.
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